Public Affairs Manager

il y a 2 semaines


Brussels, Belgique EURODIS - Rare Diseases Europe Temps plein

**EURORDIS - Rare Diseases Europe**

**Public Affairs Manager**

**Brussels, Belgium**

**About the Organisation**

EURORDIS is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research and policies.

EURORDIS’ vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no one behind.

**About the Role**

By reporting directly to the Public Affairs Director and the Head of European Advocacy, the Public Affairs Manager will be:

- A member of EURORDIS’ advocacy team while working alongside with other colleagues dedicated to European or international advocacy and contributes to EU-level advocacy work on policies and legislation to improve the quality of life of people living with rare diseases.
- Supporting the advocacy activities of EURORDIS and policy leads across relevant policy areas around social issues and human rights related to rare diseases, treatment development topics, public and mental health alongside with European Policy Network (EAC).
- Developing advocacy outputs for EURORDIS, members and the relevant networks of stakeholders EURORDIS interacts with.
- Working closely with the Communications Manager to ensure a strong and integrated communications narrative on policy issues by developing a manifesto.
- Implementing and leading certain public affairs campaigns around the EU action plan for rare diseases and related topics.
- Developing material for different audiences and stakeholders to support advocacy activities across a variety of topic areas, including policy positions, briefings, letters, contributions to consultations, toolkits, etc.
- Working with policy leads to plan and execute internal process to engage with members: in particular, help ensure that the priorities and contributions of EURORDIS’ members, notably national alliances, feed into the planning and definition of advocacy activities, and that feedback is regularly provided.
- Strengthening and proactively cultivating relationships with key decision-makers; independently liaising with and gathering inputs from external stakeholders (e.g., civil society, academia and technical experts).
- Representing the organisation in external structures, such as NGO groupings on specific topics, expert meetings, debates, working group meetings etc.

**Qualifications**
- Preferable university degree in Political Science, International Relations, EU Studies, Law, Public Health or any other relevant degree to be considered.
- Up to 3 years of relevant experience within EU Public Affairs and/or Advocacy environment (e.g., previous experience at Public Affairs Consultancies and/or NGOs are plus but not required).
- Good understanding of EU legislation and the dynamics of EU policy-making processes.
- Interest and experience in patient / civil society advocacy, health policies and rare diseases is a plus.
- Excellent written and verbal communication/people skills in English and knowledge of other EU languages to be considered a plus.
- Enthusiastic for taking initiatives as a part of an agile team with a wide variety of people from technical experts to communications.
- Self-starter with the strong ability to effectively manage several emergencies at the same time without losing track of multiple other responsibilities.

**Offer**
- Joining a team of experienced advocacy professionals, who work daily on advancing the rights and conditions of millions of affected patients
- A role with a substantial amount of visibility and potential to learn accompanied by monthly travel and events
- Full time contract and a benefits package
- Possibility of hybrid work arrangement

**How to Apply**

Applications would consist of a Cover Letter and a recent Curriculum Vitae will be processed on a rolling basis until the position is filled.

**Do not forget to mention that you found this job ad on the EURACTIV Jobsite


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